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Alberta’s Privacy Commissioner encourages action as 23andMe files for bankruptcy
Albertans who have used 23andMe are being encouraged to take immediate steps to protect their genetic data following the company’s recent bankruptcy filing in the United States.
The direct-to-consumer genetic testing giant filed for Chapter 11 bankruptcy on March 23, leaving the fate of millions of users’ sensitive information unclear. Alberta’s Information and Privacy Commissioner, Diane McLeod, says the situation presents serious concerns and is urging residents to secure their data before it is potentially transferred or sold as part of 23andMe’s assets.
“Genetic information is one of the most sensitive types of personal information that exists,” said McLeod. “Any breach of such sensitive personal information not only affects that individual, but also members of their extended biological family.”
The company’s financial documents include a vast amount of data from genomic sequencing, with some customers having left their DNA samples with the company. Media reports suggest the court has approved the sale of 23andMe’s assets, including its data holdings.
“It is uncertain who will become the new owner of 23andMe and its assets, and what their intentions may be for the personal information obtained,” McLeod said.
Users still have options to protect their data. Through account settings on the 23andMe platform, individuals can permanently delete both their account and genetic data. Under the “23andMe Data” section, users can find a “Permanently Delete Data” option. They may also opt out of participating in research and data sharing or request that their physical DNA sample be destroyed by submitting a request through the company’s customer service portal.
“These steps help reduce the risk of exposure while the company undergoes this uncertain transition,” McLeod added.
The Commissioner’s office has previously issued guidance for Albertans on the risks associated with genetic testing services. More information can be found on the Office of the Information and Privacy Commissioner of Alberta’s website.
The OIPC operates independently of government and is responsible for overseeing the Freedom of Information and Protection of Privacy Act, the Health Information Act, and the Personal Information Protection Act.
Albertans with questions or concerns are encouraged to contact the Office of the Information and Privacy Commissioner directly.
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